A1 Journal article (refereed)
Self-reported Reasons for Changes in Performance of Everyday Activities During a 2-Year Multidisciplinary Multiple Sclerosis Rehabilitation (2021)

Karhula, M. E., Kanelisto, K., Hämäläinen, P., Ruutiainen, J., Era, P., Häkkinen, A., & Salminen, A.-L. (2021). Self-reported Reasons for Changes in Performance of Everyday Activities During a 2-Year Multidisciplinary Multiple Sclerosis Rehabilitation. International Journal of MS Care, Early online. https://doi.org/10.7224/1537-2073.2020-061

JYU authors or editors

Publication details

All authors or editors: Karhula, Maarit E.; Kanelisto, Katja; Hämäläinen, Päivi; Ruutiainen, Juhani; Era, Pertti; Häkkinen, Arja; Salminen, Anna-Liisa

Journal or series: International Journal of MS Care

ISSN: 1537-2073

Publication year: 2021

Volume: Early online

Publisher: Consortium of Multiple Sclerosis Centers

Publication country: United States

Publication language: English

DOI: https://doi.org/10.7224/1537-2073.2020-061

Publication open access: Openly available

Publication channel open access: Open Access channel

Publication is parallel published (JYX): https://jyx.jyu.fi/handle/123456789/77898


Background: Few multidisciplinary rehabilitation studies with a heterogeneous design have focused on people with multiple sclerosis (MS). This study compared subjective-reported changes in performance and satisfaction with daily activities among moderately and severely disabled people with MS during a 2-year, multidisciplinary, group-based, outpatient rehabilitation program comprising education in self-management and compensatory techniques, exercise, and guided peer support.

Methods: Thirty-eight adults with moderate disability (Expanded Disability Status Scale [EDSS] score of 4.0–5.5, 74% women, mean age of 48 years) and 41 persons with severe disability (EDSS 6.0–8.5, 63% women, mean age of 48 years) were assessed at baseline and after 12 and 21 months of outpatient rehabilitation using the Canadian Occupational Performance Measure. Group × time interactions were analyzed using mixed analysis of variance. Participants’ explanations of reasons for changes in activity performance were collected via semistructured interviews and content analyzed.

Results: Statistically significant improvements in Canadian Occupational Performance Measure performance and satisfaction scores were reported in both groups from baseline to 21 months of rehabilitation. No significant between-group differences in improvement were observed. The self-reported reasons for improvement were mainly linked to environmental factors.

Conclusions: The outpatient rehabilitation program, including four themes—cognition, mood, energy conservation, and body control—improved the self-reported performance of patients with MS with moderate and severe disabilities. Environmental factors warrant consideration during rehabilitation.

Keywords: rehabilitation; multiple sclerosis; physical fitness; physical training; performance (physical capacity); self-evaluation

Contributing organizations

Ministry reporting: No, publication in press

Preliminary JUFO rating: 1

Last updated on 2021-24-09 at 07:38